Megan Kaverman realized something was wrong by 18, as she began experiencing weight gain and shortness of breath. Her family doctor couldn’t find the cause. By age 25, severe fatigue and struggles with breathing became part of her daily life. Despite multiple doctor visits, answers eluded her. She was often told her symptoms were due to nerves or weight.
At 27, during an emergency room visit, tests revealed early-stage heart failure. Refusing to leave without a diagnosis, further tests identified heritable pulmonary arterial hypertension, a rare heart condition.
Megan described her diagnosis day as her ‘rebirth’. She began treatment at the Cleveland Clinic and was able to resume daily activities. Two years later, her sister, Katie Gusching, began experiencing similar symptoms. At 32, Katie found herself struggling to breathe during simple tasks and noticed swelling in her legs. Inspired by Megan’s journey, she pursued further testing, confirming she too had the same condition.
If Megan hadn’t gone through her ordeal, Katie might not be here today. Megan’s encouragement was vital in Katie seeking essential medical help.
Their condition, heritable pulmonary arterial hypertension, stems from genetic mutations narrowing the lung’s small arteries. This increases blood pressure and stresses the heart. It constitutes less than 4% of pulmonary hypertension cases, making early diagnosis challenging.
Despite having no cure, treatments can manage symptoms. Katie struggled initially, feeling limited but found strength through Megan’s support. Megan remarked on the value of having someone close who understands the journey.
Under care at the Cleveland Clinic, both sisters have enrolled in clinical trials, seeking better treatment options. Megan is passionate about raising awareness, speaking for those who cannot.
According to their pulmonologist, Dr. Kristen Highland, advancements in treatment offer hope. Both sisters’ conditions are controlled now, allowing them to gradually return to activities they once loved. Megan runs 5Ks, and Katie recently completed a 3-mile hike, surpassing her expectations post-diagnosis.
They plan a trip to the Dominican Republic, celebrating Katie’s birthday. Routine carpooling to doctor appointments gives them a chance to connect and share experiences, further strengthening their bond. Megan and Katie find their shared challenges bring them closer, reinforcing their sisterly connection.
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